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Article published September 2013.

Advance care planning: your care, your way

Imagine, one day, without any warning, you find yourself in a life-threatening situation and unable to communicate your wishes. Who would speak for you and make healthcare decisions on your behalf?

From the 1 October all the healthcare organisations in west Essex will be offering patients the opportunity to complete an advance care plan and support them to ensure their wishes for treatment are clear if they can no longer speak for themselves.

Tracy Reed End of Life Education Facilitator from South Essex Partnership University NS Trust (SEPT) commented: “People somehow have a superstition that if you talk about the worst happening it might happen.

“But if we don’t speak up, how will others know how to help us?”

Advance care planning doesn’t need to be difficult or depressing:

THINK about what’s right for you. What’s important to you about your care?

LEARN about different medical procedures. Some may improve your quality of life, while others may not. Talk to your healthcare team for advice.

CHOOSE someone who is willing and able to speak for you and share your wishes if you can’t speak for yourself.

TALK to your family, friends and healthcare team to ensure you share your wishes

RECORD your wishes – write them down in the advance care planning booklet which is available from your healthcare team.

St Clare Hospice director of patient care Louise Cameron said: “Everyone deserves for their final wishes to be respected and the Advance Care Plan will enable our specialist palliative team to tailor our care to meet the individual needs of our patients.

“The process of advance care planning allows patients to express the type of care they wish to receive, and where they wish to be cared for, in case they lose capacity or are unable to make those decisions or preferences in the future.

“This important document will play a key part in ensuring hospice services continue to be centred round each patient and all of our staff have undergone specialist training to ensure that these discussions are handled with skill and sensitivity, allowing us to provide the very best advice and support possible.”

As life-saving interventions continue to improve and people live longer – many with complex medical conditions – advance care planning becomes increasingly important. We need to communicate our values and wishes around the use of certain procedures at the end of life, and what we believe gives our life meaning.

Make sure your voice is heard and avoid your family having to make difficult decisions during a stressful time; ask your healthcare team to help you with your advance care plan today.

-ENDS-

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